Jennifer Allison breathes through a contraction before giving birth to her daughter Sky 19 months ago. Sky was born with heterotaxy, a series of rare birth defects, and doctors warned that she might not make it past her toddler years. Allison wanted to "carry Sky as far as she wanted to go," said photographer Ash Adams, who has been documenting the family's struggle since Sky's birth.
Allison bathes Sky for the first time, six days after her birth.
Allison soothes Sky the night before a surgery. Sky has already had three open-heart surgeries and two invasive surgeries on her intestines. Parts of her heart will need to be replaced.
Allison's husband, Aaron, tired from a long night of work, listens to his wife talk with doctors in Anchorage, Alaska. Sky's heart stopped in the early morning hours that day, so she was rushed by ambulance to the hospital.
Sky, one hour after a surgery. Doctors gave her a 15-20% chance of surviving her first year.
Sky's sister, 4-year-old Story, looks out of the window in Sky's hospital room.
Allison holds Sky inside a hospital room.
In order to keep up with Sky's tube feedings outside the hospital, Allison has rigged a holder in her shoulder bag's pocket.