Separated twins move to rehab after emotional hospital farewell

Updated 10:38 AM EST, Thu December 15, 2016
02:08 - Source: CNN
McDonald twins released from hospital

Story highlights

Two months to the day since their separation surgery, twins Jadon and Anias McDonald leave hospital

The boys, born joined at the head, moved to a nearby specialty facility for months of rehabilitation

(CNN) —  

Nicole and her husband, Christian, wish the rest of the country could experience what they’ve seen and felt over the past month.

They lay side by side, Anias in a blue jumpsuit and Jadon in a gray one. They wore specially fitted white helmets, but there was no evidence of the tubes, IVs or monitors that have been their lifelines since surgery.

Outside the room, more than 30 doctors, nurses and staff at the Children’s Hospital at Montefiore Medical Center lined the hallway. A red carpet was rolled out for the boys.

It was time to say goodbye.

Among those on hand Wednesday were lead neurosurgeon Dr. James Goodrich and lead plastic surgeon Dr. Oren Tepper. Both were armed with celebratory baby rattles. Others waved pom-poms and shook tambourines as the boys made their way down the hall of the 10th-floor pediatric intensive care unit (PICU).

The staff had posted a sign on the wall: “Way to go! You did it! We are so proud of you.”

Sitting at the front of the wagon was the boys’$2 3-year-old brother, Aza.

The boys’ father, Christian McDonald, pulled the wagon as their mother, Nicole, walked with them. Both parents paused to hug almost everyone.

The moment stood in stark contrast to the boys’ arrival on February 18. On that day, the twins were on a private flight to New York from Illinois. While in the air, Anias stopped breathing and turned blue. Nicole, a pediatric physical therapist, did everything she knew to try to rouse him and worried Jadon would soon be next.

“It was a 10-minute period when all of this was happening where (Anias) was in and out of consciousness,” Nicole said.

They were rushed to the emergency room immediately upon landing. It turned out Anias was suffering from a severe strain of the flu.

And now, here the family was, leaving the same hospital amid such jubilation. They were headed to Blythedale Children’s Hospital, a specialty facility in suburban New York where they will undergo months of rehabilitation, including physical, occupational and speech therapy.

“It’s the most exciting step for me, because I want to see what they can do,” Nicole told CNN Chief Medical Correspondent Dr. Sanjay Gupta moments before she left the twins’ hospital room for the last time. “We’ve all come to agreement that it’s not goodbye. It’s just a see-you-later.”

Added Christian, “I’m excited. No ifs, ands or buts about it. I’m just so glad. From this point on, we can actually be all together as a family.”

It marked two months to the day since the 27-hour surgery to separate the boys ended on October 14 – what their dad described as a moment of “hope and a chance for a normal life.” It also marked one of the fastest such recoveries on record.

Goodrich, who earlier in the day performed craniofacial reconstruction surgery on a 9-month-old boy, acknowledged that he’d miss the twins.

“Am I happy to see them go? No,” he said. “But it’s time to move on. It’s time for the next stage.”

’They’re so cute’

The day before, Jadon and Anias took a similar wagon ride. It was the first time they’d ever left their room for something non-medical. This time, the staff wanted to throw them a farewell party.

Aza McDonald, 3, crawls into the wagon next to his twin brothers before the party.
Mark Kauzlarich for CNN
Aza McDonald, 3, crawls into the wagon next to his twin brothers before the party.

The wagon carries meaning for the parents. After they were born, the only way the conjoined twins could be moved was for their parents to pull them in a red wagon. As the months passed, the two could no longer fit in it. They had grown too long.

As they rode Tuesday, they looked up at their mother and held hands. Jadon’s head was fully revealed, with none of the bandages that once covered his scalp. Anias, whose skull cap was removed following persistent post-surgical infections, wore a turquoise knit cap.

After a quick elevator ride to the second floor, the boys made their way through a maze of hallways and into the hospital’s Grand Hall banquet room.

Awaiting them were more than two dozen staff members, from the nurses and doctors on the surgical team to those in the PICU who’ve gotten to know the boys best. There were tears and hugs, smiles and moments of glee.

And photos. Lots of photos.

Goodrich, the world’s leading expert on craniopagus surgery and the boys’ main surgeon, whipped out his iPhone and snapped commemorative shots.

“It’s a pretty emotional day, I’ve got to say,” said Goodrich, who delivered homemade cookies and other treats to the twins’ room before the party.

Another guest was Martin O’Malley, a longtime Bronx resident who lives across the street from the McDonalds. He’s helped raise donations for the family, delivered them food and felt compelled to join the party.

“It’s amazing. It’s amazing. It’s amazing,” said O’Malley, 83, whose twin sister died at birth. “It’s hard to imagine just two months ago they were attached. I’m so happy for this family.”

Dr. Carrie Stern, a plastic surgeon resident who took part in the surgery, glanced at the boys in the wagon and whispered, “They’re so cute. It’s just so amazing seeing them from beginning to end.”

’So many unknowns’

A week before the party, Nicole and Christian tended to the boys in their room. They couldn’t help but wonder about the future for Jadon and Anias.

They know about Carl and Clarence Aguirre, craniopagus twins from the Philippines whom Goodrich separated 12 years ago. With twins joined at the head, one is more dominant, his body working overtime to keep the other twin alive.

Carl was the non-dominant child. He suffered a neurological decline a little over a year after surgery, resulting in permanent disabilities. He speaks only a few words and is confined to a wheelchair.

When the McDonald twins were joined, Jadon was dominant. Since the surgery, Anias has suffered multiple seizures, in addition to having his skull cap removed. He will undergo another surgery when he is 7 to insert bone. For now, his skin is the only thing covering the top of his head, and he will have to wear a protective helmet.

“There are just so many unknowns,” Christian said. “We just don’t know how it’s all going to turn out.”

Added Nicole, “Because we know other cases have had that regression, you just hope and pray that that doesn’t happen in this circumstance.”

The couple gave up their jobs in Illinois and moved to the Bronx to be close to the hospital. When the new year arrives, they’ll face a $15,000 insurance deductible, plus whatever unexpected costs might arise. Their apartment lease is up in February, and they don’t know whether to renew for another year, because it’s unclear how long the boys will be in rehab.

Nicole and Christian McDonald with 3-year-old son Aza and the twins before surgery.
Krisanne Johnson/Verbatim for CNN
Nicole and Christian McDonald with 3-year-old son Aza and the twins before surgery.

The couple started a GoFundMe page after the twins were born, but after donations swelled to nearly $300,000, the McDonalds told well-wishers to instead help a friend’s child in need of a kidney transplant. With the long-term financial reality of their situation sinking in, they are once again receptive to people giving.

“I feel like we’ve got a long ways to go,” Christian said.

He noted that Anias will be cognizant by age 7, aware of the surgery he will have to face to repair his skull cap: “My heart already goes out to him.”

Christian and Nicole faced a decision no parent should have to make. Craniopagus twins occur in one out of every 2.5 million births. About 40% are stillborn, and another third die within 24 hours. Of those who survive, 80% die of medical complications by age 2 if not separated.

Mom and Dad said they have no regrets about choosing surgery.

“When you walk into the room and Jadon throws his arms up and wants you to pick him up and you can! He looks at me,” Nicole said. “He wiggles from side to side. He giggles. And I can just swoop him up and just hold him and feel his warmth.”

Of Anias, she said, “He has really come full circle and begun doing all the things he used to do. And that’s been so encouraging, because I always had that worry about Anias.”

As she spoke, the boys held hands on a bed where Mom spread them out. At one point, Jadon pulled Anias’ hand to his face and then nibbled on his brother’s finger. Mom quickly intervened to save Anias from being bitten.

A sense of parental normalcy, when nothing is normal.

After nine months, ‘rebirth’

At the goodbye party, doctors, nurses and staff sat around tables, a buffet of chicken, salmon, green beans, mashed potatoes and salad behind them ready for the feast.

Aza bounced around the room, excited for the twins.

All eyes were on Dr. Steven M. Safyer, president and CEO of Montefiore Medicine, as he told Nicole and Christian how the 35,000 Montefiore employees have been rooting for their boys and consider them family.

“I believe that for life, you’re members of our world, and this is a wonderful world,” Safyer said.

He noted that it’s been nine months since he first met the family and that “in a way, this is a nine-month deal. This is the rebirth of these two guys.”

Tepper, the lead plastic surgeon, told the crowd he was humbled by the fact that the “McDonalds chose us. They put their trust in us to take care of their boys.”

“Hands down, unquestionably, the two leaders of this team are Jadon and Anias,” Tepper added. “It’s their resilience, it’s their determination that steered this voyage. There’s a reason the world calls them ‘The Little Warriors.’ “

Goodrich told the crowd he remembered speaking by phone with Nicole the first time, back when the boys were in utero and she was wondering what could be done to separate them. She told Goodrich she had just one question. Forty-five minutes later, they were still talking: “Totally in tune and all the right questions.”

The neurosurgeon thanked everyone in the room, from hospital brass to his team in the operating room to Christian and Nicole. Then he held up a hand-written note he received from Ireland, “to show you how far this story went.”

It was addressed simply:

Dr. James Goodrich, surgeon
Children’s Hospital Montefiore Medical Center

No ZIP code. No city or street address. “Somebody in the postal system got this to me,” Goodrich said.

When it came time for the parents to speak, the room grew quiet. Many clutched tissues and dabbed their eyes.

Christian told the group that as grateful as he and Nicole are, they will “never be half as grateful” as their sons.