Mom with ALS: My disease will make my daughter stronger

Story highlights

  • Sarah Coglianese was diagnosed with ALS in her early 30s
  • At 5, her daughter, Scarlett, "is far more self-sufficient than I am"

Sarah Coglianese is a writer living in San Francisco. Her work has been published in The New York Times and Redbook Magazine, and she blogs regularly at

(CNN)My daughter was an energetic and fearless kid who our doctor had declared would be walking before her first birthday. It came and went, and Scarlett still wasn't toddling on two feet. To balance any concern, I would say things like, "It's not like she's going to be crawling into junior high."

Sure enough, one spring day when she