Eden Gold has a rare genetic disease called ML4. Doctors say her mental development was halted at 18 months, and she'll be blind by age 12. Eden is not expected to live beyond early adulthood.
'Eden is here to save lives' —
Eden Gold has a rare genetic disease called ML4. Doctors say her mental development was halted at 18 months, and she'll be blind by age 12. Eden is not expected to live beyond early adulthood.
Courtesy Gold Family
Randy and Caroline Gold met in December 2003. Knowing that one in five Ashkenazi Jews in the United States are carriers for a genetic disease, the Golds were screened before they got married in 2004.
'Eden is here to save lives' —
Randy and Caroline Gold met in December 2003. Knowing that one in five Ashkenazi Jews in the United States are carriers for a genetic disease, the Golds were screened before they got married in 2004.
Courtesy Gold Family
After having a healthy baby boy, the Golds quickly decided to have another child.
'Eden is here to save lives' —
After having a healthy baby boy, the Golds quickly decided to have another child.
Courtesy Gold Family
Eden was born in January 11, 2008. Caroline noticed early on that she was not meeting her milestones and suspected something was wrong.
'Eden is here to save lives' —
Eden was born in January 11, 2008. Caroline noticed early on that she was not meeting her milestones and suspected something was wrong.
Courtesy Gold Family
The family of four was on top of the world until their dreams were shattered in August 2009 when Eden was diagnosed with ML4, a Jewish genetic disease for which the Golds thought they had been screened.
'Eden is here to save lives' —
The family of four was on top of the world until their dreams were shattered in August 2009 when Eden was diagnosed with ML4, a Jewish genetic disease for which the Golds thought they had been screened.
Courtesy Gold Family
Using IVF and pre-implantation genetic testing, the Golds had a healthy baby girl in February 2012. Big brother Natanel and little Shai love their sister, Eden.
'Eden is here to save lives' —
Using IVF and pre-implantation genetic testing, the Golds had a healthy baby girl in February 2012. Big brother Natanel and little Shai love their sister, Eden.
Courtesy Gold Family
Eden is now 5 years old. She spends two to four hours a day working with therapists and attends an inclusive school program for children with special needs.
'Eden is here to save lives' —
Eden is now 5 years old. She spends two to four hours a day working with therapists and attends an inclusive school program for children with special needs.
Courtesy Gold Family