National Institute of Allergy and Infectious Diseases (NIAID)
NIH Building 31, Room 7A32
9000 Rockville Pike
Bethesda MD 20892
One of the institutes in the National Institutes of Health, a division of the US Government. Their primary mission is to support and conduct research in allergic and infectious diseases as a means to determine methods for prevention, treatment, and management of the diseases. Call them for information on various conditions, or find the same information on their web site.
American Lung Association (ALA)
New York NY 10019-4374
A leading source of information and public education on lung health. If you phone them, they will send you helpful information about your particular concern. Their web site has been designed to give you easy access to information on a variety of lung health issues, including asthma, asthma and children, smoking and tobacco control, lung disease and related diseases, lung health for diverse communities, and environmental health.
Allergy, Asthma & Immunology Online
This is an information and news service for patients and parents of patients. The site is maintained by allergists, the medical specialists who treat allergies and asthma, and their professional association, the American College of Allergy, Asthma & Immunology. You will find a wide range of subjects here including information on the nationwide asthma screening program, an asthma life quality test, advice from your allergist, and news releases about allergy and asthma.
PharmInfoNet's Respiratory Disease Center
PharmInfoNet is a huge site with information in many different disease areas. It is primarily sponsored by pharmaceutical companies, and tends to be heavy in information about pharmaceuticals. Their Respiratory Disease Center contains articles from Medical Sciences Bulletin, highlights from medical meetings, discussion groups for both health care professionals and patients, resources listings for patients, and FAQs. Subjects include asthma, lung disease, sinusitis, etc. Much of the information they offer is actually made up of links to other sites. This is a good starting point and might help you uncover a broad range of material, sources, and information.
Allergy and Asthma Network/ Mothers of Asthmatics, Inc.
3554 Chain Bridge Road, Suite 200
Fairfax VA 22030-2709
This is an organization that focuses on the aspects of parenting children with allergies and asthma. It is made up of parents of children with allergies or asthma and health care professionals in the field including allergists, pediatricians, and asthma specialists. They publish a monthly report and several brochures. They also produce educational videotapes about medications.
National Asthma Education and Prevention Program (NAEP)
PO Box 30105
Bethesda MD 20824-0105
The NAEP was formed as a program within the National Heart, Lung, and Blood Institute (NHLBI), a section of the National Institutes of Health. Their goal is to increase public awareness of asthma as a chronic disease and to disseminate diagnostic and treatment information. They write treatment guidelines available to physicians and other health care providers. They also publish educational materials for patients and their families in both Spanish and English.
National Jewish Center for Immunology and Respiratory Medicine:
1400 Jackson Street
Denver CO 80206
(800) 222-LUNG (5864)
National Jewish Center is a treatment and research facility dedicated to prevention, treatment, and education in the area of chronic respiratory diseases. They target diseases such as asthma, tuberculosis, cystic fibrosis, bronchitis, emphysema, and lupus. They maintain a respiratory research library, present civic awards, and offer many publications for education of the public. They also sponsor Lung Line, a hotline staffed by nurses who will answer questions the public has about respiratory diseases. They publish a quarterly newsletter for the public; a monthly update of their research programs; a monthly scientific update; and an annual report.
National Well Spouse Foundation
PO Box 28876
San Diego CA 92198
This is an organization for the families of the chronically ill. They offer an emotional support network and work to increase public consciousness about the role and issues of well family members. They establish local support groups, and offer a variety of information and materials. Their publications include two newsletters that are free with membership.
Respiratory Health Association (RNS)
301 Sicomac Avenue
Wyckoff NJ 07481
Comprised of health professionals in the pulmonary field, this group works to promote respiratory health and to prevent the onset of respiratory diseases. They work with the public, teaching breathing techniques, exercises, nutrition, medication use, and practical skills to maintain or achieve respiratory health. They support and offer courses in smoking cessation, coping with chronic lung diseases, and the benefits of exercise for pulmonary health. RNS also organizes group vacations for people who are using supplemental oxygen.
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