The Littlest Patients
September 20, 1999
Web posted at: 12:44 p.m. EDT (1644 GMT)
by Jeffrey P. Kahn, Ph.D., M.P.H.
University of Minnesota
In the ongoing search for earlier diagnosis and treatment of illness, the patient population keeps getting younger. In addition to assessing the health of fetuses through genetic testing and improved ultrasound, physicians are now perfecting techniques of fetal surgery to correct everything from congenital heart defects to cleft lips. But such treatments raise questions of when it is acceptable to carry out procedures that are risky to both fetus and mother, and how fetal surgery challenges our perspectives about when life begins.
Turning one patient into two
Surgery on newborn babies carries certain risks, depending on the age and
health of the child. If the same surgery is performed before the child is
born, similar risks exist, as well as risk to the mother. In performing fetal
surgery, the physician takes on an additional patient -- the mother -- and
whatever benefit the surgery may provide must now be weighed
against the risk not only to the fetus but to the mother as well.
To wait or not to wait
Fetal surgery carries additional risks on top of the risks of
similar surgery after the baby is born: a risk of premature delivery, and
even additional risk of death or disability. To offset these risks, fetal
surgery needs to offer substantial benefits over waiting. Health problems
that threaten the life of the fetus will surely qualify (correcting a heart
defect), as might surgeries to prevent disability (closing a neural tube
defect), whereas cosmetic surgeries will be difficult to justify. Some
parents may be willing to use fetal surgery for any of these reasons, and we must ask how far they should be allowed to go.
Changing the status of the fetus
The availability of any new medical technique raises questions about which
patients ought to be treated; but fetal surgery opens the door to an
altogether new class of patients. No longer is birth the bright line before
which only very limited direct medical care is possible. Fetal surgery may
actually blur the distinction between babies and fetuses, and with it who
has the right to decide about whether and when to treat.
Fetal surgery makes it possible to think of the fetus as a patient almost
separate from its mother, with its own medical interests to be considered.
Can these interests be separated from those of the mother, and if so, who
should be making treatment decisions on behalf of the fetus? Up to now the mother has had sole decision-making authority, since nearly any treatment for the fetus could take place only by treating her at the same time. But fetal surgery offers a way to treat the fetus directly, and so challenges the mother's decision-making authority.
The opportunity to treat or remove threats to health before birth is so
appealing that we will probably continue to forge ahead with fetal surgery.
But since it also affects the health of the mother, there must be compelling
reasons to justify not waiting until a baby is born for its treatment.
Curing birth defects is now possible, and someday soon we may even see organ transplants on fetuses. But no matter how great the potential gain, forcing fetal surgery on a pregnant woman would be a setback at least as great as any advance the technology represents. The benefits of fetal surgery to its smallest patients may be great but will be unacceptable if its moral price is too high.
Physicians are now perfecting techniques of fetal surgery to correct everything from congenital heart defects to cleft lips. But such treatments raise serious ethical questions: When it is acceptable to carry out procedures that are risky to both fetus and mother? Which kinds of fetal health problems deserve such early intervention? Under what conditions, if ever, can pregnant women be forced to have surgery on their fetuses?
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"Ethics Matters" Archive
where you'll find other columns from Jeffrey Kahn
on a wide range of bioethics topics.
"Ethics Matters" is a biweekly feature from the
Center for Bioethics and CNN Interactive.
Doctors optimistic about results of spinal-defect surgery on fetus
November 20, 1998
Ethicists, doctors debate multiple births
December 22, 1998
Evanston Northwestern Perinatal Center Specializing in High-Risk Pregnancy
The Florida Institute for Fetal Diagnosis and Therapy
Children's Hospital of Philadelphia Center for Fetal Diagnosis and Treatment
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