Elder care: Making the right choiceNursing homes used to be the only stop for seniors who need help. Now there are optionsBy John Greenwald
August 23, 1999
Web posted at: 10:41 a.m. EDT (1441 GMT)
Marjorie Bryan's husband died 14 years ago. That was when she
lived in Mississippi, and for some time afterward she went on
living on her own. Now she's 82. A few years ago, she started
having trouble with her balance and taking falls. Bryan has a
grown son in Georgia, but moving in with him didn't seem like
the answer. It's one thing to have a roof over your head. It's
another to have a life. "I didn't want to live with my
children," she says. "I think it would bore me to death. I don't
drive anymore. If I'd stayed there, I'd be sort of a prisoner
during the day."
So Bryan went looking at the alternatives. It turned out there
were more than she had imagined. A couple of decades ago, seniors
like her who were basically healthy but needed some assistance
had limited choices. Among them, they could move in with their
grown children, if they had any and were willing to risk the
squabbling and sulking. Or they could be bundled off to a nursing
home that was like a hospital, only less inviting. All that began
to change in the early 1980s with the growth of a new range of
living arrangements for older people who want to live as people,
not patients, without the physical confinement and spiritual dead
air of many nursing homes.
Aging in America
The number of American seniors is growing. They're independent
now, but it won't last forever.
76
Currently the average life expectancy for Americans
43
Percentage of today's seniors who will use a nursing home in
their lifetime
25
Percentage of elderly housing residents in assisted-living
facilities now
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Eventually Bryan came upon the Gardens of Towne Lake in
Woodstock, Ga., a landscaped complex where about two dozen
seniors live in their own apartments and have round-the-clock
staff members to help with daily tasks such as dressing and
bathing. There are regular social events. There's a beauty shop.
"I love living here," she says. "I got out that first day to
learn names."
The late 20th century has done for the retirement years what it
did for TV channels and fancy coffee. It multiplied the choices
but also the consumer bewilderment. For seniors who want to stay
in their homes as long as they can, there is home care for the
masses--agencies everywhere that provide nurses and aides who
either come by your place on a regular basis or live in.
Traditional nursing homes are still widely used, though they are
evolving away from long-term care and toward rehabilitative
facilities, for short-term stays following hospitalization. The
most popular new options are assisted-living facilities. There
are an estimated 20,000 to 30,000 such places in the U.S.,
according to industry figures. Assisted-living complexes are home
to one-fourth of the 2.2 million Americans who live in housing
for seniors, according to the American Seniors Housing
Association. Some are free-standing facilities. Some are part of
continuing-care retirement communities, which offer increasing
levels of help and medical supervision as residents move through
the years.
The options
What is it?
Whom is it for?
What does it cost?
What does it offer?
Home care
--Services ranging from shopping and transportation to physical
therapy brought to the home
--Seniors who are able to continue living at home but need some
help
--Some services are free; a home health-care visit can be $80
--Independence at home, but can be costly depending on level of
care needed
Congregate housing
--A private home within a residential compound, providing shared
activities and services
--Seniors in good health who want both independence and
companionship
--Often $1,200 to $2,000 a month, yet can cost much more
--The advantages of home, plus services like 24-hr. security and
laundry
Assisted living
--Residential units offering private rooms, meals, 24-hr.
supervision and other assistance
--Seniors who may need help with bathing, dressing, medication,
etc.
--Averages $2,000 a month, but can be far more for high needs n A
greater level of care while maintaining some independence
Continuing-care facilities
--A variety of housing options and a continuum of services all
in one location
--Seniors who want to provide for health needs as they age
without having to relocate
--$1,500 to $5,000 a month. Most require an entry fee
--Guaranteed care as a resident ages--at a relatively high price
Nursing homes
--Residential medical care for the aged who need continual
attention
--Seniors with deteriorating mental or physical abilities or
great difficulty with daily activities
--Average close to $50,000 a year
--About the only option for those who need constant care
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"The assisted-living movement has really changed the way people
age," says Karen Wayne, president of the Assisted Living
Federation of America (ALFA), an industry trade group. "We've
proved that people don't want to be in institutional settings."
The facility provides each resident with a room or suite; meals,
usually in a common dining room; and round-the-clock staff
members who help with the no-big-deal chores of the day that can
still defeat the mostly capable elderly--bathing, dressing, taking
medication. Assisted living gives the elderly some measure of
independence, a chance to socialize and needed privacy. Privacy
for all sorts of things--sex has hardly disappeared from these
seniors' lives. A survey released this month by the American
Association of Retired Persons revealed that a quarter of those
75 or older say they have sex at least once a week.
The widening flood of Americans into later life--Tina Turner turns
60 this year!--guarantees that elder care will be a 21st century
growth industry. The market, which was $86 billion in 1996, is
expected to reach $490 billion by 2030. That potential is
attracting such big developers as the Hyatt Corp. and Marriott
International hotel operators. The 3,300 units of senior housing
that Hyatt operates in 16 communities around the country are
worth an estimated $500 million.
The old people that assisted living caters to are usually able to
get out of bed and walk around. But their average age, estimated
by ALFA, is 83, so they can also be frail. Almost half have
Alzheimer's or some degree of cognitive impairment. (Alzheimer's
patients tend to have their own, more closely supervised areas.)
John Knox Village, in Pompano Beach, Fla., is a not-for-profit
continuing-care operation on a landscaped campus with meandering
walks and duck ponds. In an arrangement typical of such places,
the elderly buy a residence--studio apartments are $48,500;
two-bedroom "villas" are $142,500--and a continuing-care contract
that sets a monthly maintenance fee covering all services. While
they may begin life there in a mostly independent mode, taking an
apartment with meals, they can later move to assisted-care rooms
or even the on-campus nursing home for about the same monthly
maintenance fee, usually a fraction of what a regular nursing
home demands.
Carl Kielmann, 73, is a retired banker and the second generation
of his family to live at John Knox in the Health Center. He and
his wife Lillian moved there in 1985, joining his mother, who was
also a resident. His mother's contract with Knox allowed her to
spend her last six years in the village medical center without
eating up her savings. "In a lot of ways," says Kielmann, "this
type of place is your ultimate insurance policy."
Other assisted-care facilities can be a single building. Sunrise
Assisted Living in Glen Cove, N.Y., is a 57,000-sq.-ft. soft
yellow mansion with white gingerbread trimmings. The 83 seniors
who live there each pay between $2,850 and $4,800 a month. On a
recent day the buttery smell of fresh popcorn wafted through the
vestibule. On the door of its suites, framed "memory boxes"
display mementos of the lives of the people who live behind those
doors--family photos, military dog tags and other souvenirs of
long lives. In the special section for residents with
Alzheimer's, one area is stocked with old tool kits, wedding
gowns and a crib with several dolls, haunting but therapeutic
props meant to engage the minds of people who have returned in
fantasy to younger days when they worked and raised families. "We
want to create pleasant days for these folks," says Jennifer
Rehm, who runs the busy activity room. "This is not usually a
neat place by the end of the day."
Keeping the elderly connected to the larger world is a big part
of the idea behind assisted living. At the Munne Center in Miami,
where family gatherings are featured, residents look forward to
seeing their neighbors' grandchildren as eagerly as they do their
own. Cecilia Struzzieri, 95, recently moved into Munne after
living with her daughter. "I was getting feeble, and she wanted
her freedom," Struzzieri says with a sigh. "Here I get all the
attention I need." Miami developer Raul Munne, who built the
place, is a Cuban immigrant. "Where I grew up," he jokes, "the
elderly sat on the porch and fought with the neighborhood kids.
It gave them incentive to get out of bed in the morning." But in
the U.S., he says, "old folks are told, 'Don't open your door and
go out at night. You might get mugged.' So, many of them have no
one to talk to all day. They can only sit and watch television."
Later life lived this way doesn't come cheap. The Del Webb
company, which made its name building luxury spas and retirement
communities in the Sun Belt, last year opened a Sun City
retirement community in Huntley, near frost-belted Chicago, an
acknowledgment that seniors increasingly prefer to locate near
longtime friends and family and not move to far-off sunny climes.
Prices range from $130,000 for a single-level fourplex to
$750,000 for customized estate homes that include home theaters,
Jacuzzis and wine cellars, where an eminent Bordeaux can age
along with its owners.
The typical assisted-living unit rents for about $2,000 a month,
meals and basic services included. And prices can go much higher.
Furthermore, assisted-living communities are not medical
facilities, so their costs are not covered by Medicare or
Medicaid, though 32 states do permit the limited use of Medicaid
funds for assisted living. No wonder, then, that the average
assisted-care resident has an income of $26,000 annually, while
the typical retiree has $20,700.
Useful websites
www.senioralternatives.com
A virtual tour of selected retirement communities around the
country
www.elderweb.com
Lots of links to specific subjects, including a useful housing
guide
www.aarp.org
Includes detailed tips on modifying a home to accommodate seniors
www.ec-online.net
Comprehensive information about Alzheimer's disease
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The boomtown growth of the assisted-living industry has left it a
bit rough around the edges. While nursing homes are federally
regulated, assisted-living communities are overseen by the states
and thus subject to widely varying standards. A federal study in
four states (California, Florida, Ohio and Oregon) found "unclear
or potentially misleading" language in sales brochures for about
one-third of the 60 assisted-living homes surveyed. The most
common problem was a failure to disclose the circumstances under
which a resident can be expelled. One Florida home promised that
seniors would not have to move if their health deteriorated, but
the fine-print contract said physical or mental decline could be
grounds for discharge.
Congress has begun poking into the problem, partly by way of its
work to update the 1965 Older Americans Act, which provides
penalties for scams on the elderly. "New services that meet the
needs of our growing senior population are necessary and
exciting," says Louisiana Senator John Breaux, ranking Democrat
on the Senate Special Committee on Aging. "But the facilities are
market driven and are susceptible to a bottom-line mentality that
can lead to consumer fraud and abuse."
Of course, they are. Late-century American life is a social
experiment in which we hope that market institutions can be
fashioned to meet the most personal requirements. And sometimes
they can be. New living arrangements for the elderly are still
evolving. If that evolution isn't finished in time for all our
parents to take advantage of, for many of us there will be a
second chance--when it's our turn.
--Reported by Aixa M.
Pascual/New York, Greg Aunapu/Miami, Leslie Everton
Brice/Atlanta, Anne Moffett/Washington and Kermit Pattison/St.
Paul
MORE TIME STORIES:
Cover Date: August 30, 1999
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