Jennifer Allison breathes through a contraction before giving birth to her daughter Sky 19 months ago. Sky was born with heterotaxy, a series of rare birth defects, and doctors warned that she might not make it past her toddler years. Allison wanted to "carry Sky as far as she wanted to go," said photographer Ash Adams, who has been documenting the family's struggle since Sky's birth.
Allison bathes Sky for the first time, six days after her birth.
Allison soothes Sky the night before a surgery. Sky has already had three open-heart surgeries and two invasive surgeries on her intestines. Parts of her heart will need to be replaced.
Allison's husband, Aaron, tired from a long night of work, listens to his wife talk with doctors in Anchorage, Alaska. Sky's heart stopped in the early morning hours that day, so she was rushed by ambulance to the hospital.
Sky, one hour after a surgery. Doctors gave her a 15-20% chance of surviving her first year.
Sky's sister, 4-year-old Story, looks out of the window in Sky's hospital room.
Allison holds Sky inside a hospital room.
In order to keep up with Sky's tube feedings outside the hospital, Allison has rigged a holder in her shoulder bag's pocket.
Allison puts on makeup while Sky sleeps at the Ronald McDonald House about a month after a surgery.
Allison went out to pick up ingredients for Sky's birthday cake, and when she returned she was surprised to find a beautiful cake already there. Her friend, Susan, had dropped it off while she was out.
Allison walks to the market with Sky on the day before her third open-heart surgery.
Although child car seats are usually supposed to be put in the back of a car, Allison drives with Sky up front so she can monitor her daughter's color and breathing. "It's the lesser of two evils," she told Adams.
Allison changes Sky's ostomy bag.
Sky has begun taking small steps here and there on her own.
Sky looks down at her brother, Sage.
Allison slices Story's birthday cake near Sage, Sky and their grandfather.