- Alex Gentile is one of 18 people on Earth who've been diagnosed with XLPDR
- The disorder makes the 8-year-old incredibly sensitive to sunlight
On March 28, researchers released a paper detailing the discovery of the mutation that causes XLPDR in the journal Nature Immunology. This story is updated to reflect new information.
(CNN)Alex Gentile has a very simple wish. The 8-year-old wants to run with his friends on the playground.