Suzanne Heijnen has Prader-Willi syndrome. The genetic disorder's most prominent symptom is an insatiable appetite -- you never feel full. Photographer Peggy Ickenroth spent two weeks with Suzanne and her family, hoping to learn more about the disease and how it affects people.
Other symptoms of Prader-Willi include low muscle tone, developmental delays and difficulty controlling emotions. Suzanne's spine is in such a bad condition that it's crushing her lungs, Ickenroth said. She needs to wear this brace all the time.
Suzanne's mother checks her teeth.
Suzanne looks in the fridge for a healthy snack that she's allowed to have in the afternoon. She has been on a limited diet since age 2.
Suzanne's parents serve her food on a special plate to make it look fuller.
Suzanne takes judo to build strength and keep her weight under control.
Suzanne and her mother ride a specialized bike together.
Suzanne plays with dolls at the family's home in the Netherlands.
Suzanne's mother helps her take a shower.
Suzanne's dad makes her breakfast before going to work. Suzanne only allows somebody else to prepare it for her in very rare circumstances, Ickenroth said.
"During the days that I've followed Suzanne, I saw many sides of her: happy Suzanne, sad Suzanne, excited Suzanne etc.," Ickenroth said. "I feel like in this moment I've seen the young woman that is inside of her."