- The testing rate is around 7 to 10% for those who know they're at risk for Huntington's disease
- Economist Emily Oster found they believe they're better off not knowing
It starts with a twitch, maybe a stumble. There's a forgotten word or name here and there. Really, it appears a little like drunkenness. But when symptoms of Huntington's disease progress, they consume the person who has it. The neurodegenerative disease simultaneously disintegrates mental and physical functioning, leaving the patient completely dependent on a caretaker or medical devices, or both, for the smallest of tasks: eating, sitting up, swallowing. A person with Huntington's will eventually lose control over their own body and mind. There is no treatment, and no cure.