Skip to main content

The Supreme Court, health care reform and one little girl

By Elizabeth Cohen, Senior Medical Correspondent
updated 10:07 AM EDT, Tue March 27, 2012
STORY HIGHLIGHTS
  • Three-year-old Violet McManus suffers from seizures that threaten her breathing
  • Her parents fear Supreme Court could restore health care insurance caps on her coverage
  • Supreme Court is hearing arguments this week on health care reform law

Novato, California (CNN) -- When health care reform passed Congress more than two years ago, Julie Walters yelled for her husband to come into the living room where she was watching the vote live on television.

"I was so happy," Walters remembers. "I yelled for Matt. I said, 'Do you know what this means? Do you know what this means?'"

The historic vote meant their 18-month-old daughter, Violet McManus, would be able to keep her health insurance. Without health care reform, she would have gotten kicked off her parents' insurance, perhaps as early as her 5th birthday, because her care is so expensive.

"I was like, Violet's covered now!" Walters remembers. "We're okay. We can breathe."

But now Violet's parents are worried they won't be able to breathe easily again.

This week, the Supreme Court is hearing a debate on health care reform. The court could keep the reform intact, repeal parts of it, or get rid of the law altogether.

"I'm really scared," Walters says. "Like, I-can't-sleep scared."

'Completely blue in her crib'

Violet McManus was born healthy, but when she was 11 months old her parents woke up in the middle of the night in their Novato, California, home to find her having a seizure.

Explaining penalties for no insurance
CNN Explains: Health care reform
Supreme Court health care debate: Day 1
How to fix U.S. health care
Quick breakdown of key issuesQuick breakdown of key issues

"She was completely blue in her crib and shaking," Walters remembers.

It was to be the first of hundreds of seizures -- sometimes thirty in one day.

Violet has been hospitalized about six times and each hospitalization cost more than $50,000.

She's now on two drugs to control the seizures and carries oxygen with her wherever she goes because she stops breathing when she has her seizures. She needs speech therapy and frequent doctor's visits.

See more about Violet and her family

Matt McManus, Violet's father, gets health insurance through his work as a video game designer. Before health care reform, there was a $5 million lifetime limit on Violet's insurance policy. Violet is now 3 and her parents calculate she could hit that cap by her 5th birthday, and almost certainly by her 10th.

See a quick breakdown of key health care reform issues

Health care reform made lifetime limits illegal -- which is why Violet's family breathed easier when it passed -- but now her parents are worried the Supreme Court could restore the limits and Violet would lose her insurance. Walters has been so passionate about health care reform she contacted the office of Sen. Barbara Boxer (D-California) and MomsRising.org to advocate for the law.

If Violet does lose her current insurance, her parents know there's no way another insurance company will want to insure her because her care is so expensive.

"They'd be crazy to want to insure her," Walters says. "I mean, I wouldn't want to insure her if I was an insurance company."

Watching the Supreme Court case closely

Several provisions of health care reform have already gone into effect, so millions of other people, like Violet McManus, stand to lose a lot if all or part of it is reversed.

For example, 2.5 million young Americans get to stay on their parents' insurance until their 26th birthday because of health care reform, according to the Obama administration.

Seniors and people with disabilities have saved $3.2 billion on prescription drugs because of health care reform and insurance companies and 45 million women have received free mammograms and pap smears because of health care reform.

There are ripple effects, too.

After health care reform passed, Walters and McManus felt more secure about Violet's future and decided to have another child. Violet's little brother, Rory, was born two weeks ago.

Elizabeth Cohen is a senior medical correspondent for CNN.
Elizabeth Cohen is a senior medical correspondent for CNN.

iReport: Should health insurance be mandatory?

Violet's parents know not everyone shares their enthusiasm about health care reform. Some people even traveled to Washington to protest in front of the Supreme Court this week. In particular, they object to the "individual mandate," which requires nearly all Americans to purchase insurance or pay a fine.

The protesters object to being forced to pay for something they don't want, but Walters and McManus see it differently.

At any point in time they say someone could find themselves in a difficult situation like they're in now and would want a system that insures you no matter how sick you are.

As McManus puts it, "I think people just sort of need to change their mindset about health care."

CNN's John Bonifield and William Hudson contributed to this report.

ADVERTISEMENT
Part of complete coverage on
Supreme Court: Health care
updated 3:51 PM EDT, Mon March 26, 2012
A majority of justices appeared to reject suggestions they wait another few years before deciding the issues.
updated 8:26 PM EDT, Mon March 26, 2012
Rick Santorum went to the steps of the U.S. Supreme Court to attack fpresidential rival Mitt Romney.
updated 10:07 AM EDT, Mon March 26, 2012
CNN's Jeffery Toobin says the foundation of Barack Obama's presidency is on the line in these hearings.
updated 3:57 PM EDT, Mon March 26, 2012
There's been lots of talk about the new health reform law. Here are 10 things you might have missed.
updated 10:34 AM EDT, Mon March 26, 2012
Fareed Zakaria and Ali Velshi discuss America's low health care ranking and health care views from around the world.
updated 5:34 PM EDT, Sun March 25, 2012
The Supreme Court will tackle four major issues during oral arguments Monday through Wednesday.
updated 4:45 PM EDT, Sun March 25, 2012
What specific questions will the Supreme Court address? Here's your guide to the arguments
updated 3:59 PM EDT, Mon March 26, 2012
Few Americans have any real idea how the Supreme Court operates. Here's your insider's guide.
updated 4:52 PM EDT, Sun March 25, 2012
A supporter of the law says people with pre-existing conditions need its protections.
updated 4:57 PM EDT, Sun March 25, 2012
An opponent of the law says that some of the most important reforms ended up being cut.
updated 4:02 PM EDT, Mon March 26, 2012
Some Supreme Court decisions make a huge election-year splashes.
updated 9:30 AM EDT, Sat March 24, 2012
CNN's Lizzie O'Leary explains the winners and losers in the new health care law, with a storybook style.
ADVERTISEMENT
ADVERTISEMENT
ADVERTISEMENT
ADVERTISEMENT