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House sends anti-genetic discrimination bill to Bush

  • Story Highlights
  • Bill would prevent the use of genetic information for insurance, job decisions
  • House passed measure 414-1, the Senate 95-0
  • President Bush expected to sign bill
  • Rep. Ron Paul, R-Texas, only member to vote against legislation
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WASHINGTON (AP) -- Companies would no longer be able to use genetic information like a person's predisposition for breast cancer, sickle cell or diabetes to make insurance or job decisions under a bill passed by Congress on Thursday.

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A bill banning genetic discrimination is waiting for President Bush's signature.

The House voted 414-1 for the legislation a week after it passed the Senate on a 95-0 vote. The bill would bar health insurance companies from using genetic information to set premiums or determine enrollment eligibility. Similarly, employers could not use genetic information in hiring, firing or promotion decisions.

Rep. Ron Paul, R-Texas, was the only member of Congress to vote against the bill.

President Bush is expected to sign it into law.

Rep. Louise Slaughter, D-New York, said that for years doctors have been forced to tell women whose families have a history of breast cancer to refuse genetic testing for fear of discrimination.

"They have recommended to them that until a bill such as the one we are passing today becomes law in this country, they should not put at risk their health insurance," Slaughter said.

The use of genetics to determine insurance and benefit eligibility is not unprecedented.

In the 1970s, several insurers denied coverage to blacks who carried the gene for sickle cell anemia. The Lawrence Berkeley National Laboratory in California secretly tested workers for their disposition to such crippling afflictions as cystic fibrosis, Huntington's disease or Lou Gehrig's disease.

"Currently the fear of misuse of genetic information is preventing people from getting these important genetic tests done," said Rep. Pete Sessions, R-Texas. "The refusal to utilize effective genetic tests hurts individuals, researchers, and doctors alike. Lack of testing denies individuals important medical information that they could otherwise use to be proactively managing within their health with their doctor."

According to National Human Genome Research Institute, 41 states already have enacted legislation related to genetic discrimination in health insurance and 31 states adopted laws regarding genetic discrimination in the workplace.

There has never been a federal law, although then-President Clinton issued an executive order early in his administration to ban the federal government -- the nation's largest employer -- from demanding that employees undergo any sort of genetic test or from considering a person's genetic information in hiring or promotion decisions. E-mail to a friend E-mail to a friend

Copyright 2008 The Associated Press. All rights reserved.This material may not be published, broadcast, rewritten, or redistributed.

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